Working with Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
Blog Category: Education
Invaluable Little Moments
At a time when technology infuses our lives in almost every way, it is hard to imagine that the...
Advocacy in Action: My Experience Lobbying for The Marfan Foundation on Capitol Hill
In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...
A Workplace Issue You Probably Didn’t Anticipate
It never gets easier. Each time I have to tell someone new about my husband's condition, it seems...
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