We created a template referral letter for you to use to simplify the process when you are referring a patient to a specialist for further evaluation or testing for the diagnosis of Marfan syndrome or a related disorder. The letter makes it easy for you to note the features you observed that raise your suspicion of these disorders.
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In order to have better outcomes in the emergency department for people with genetic aortic and vascular conditions, a Patient Care Coordination Note (PCCN), can provide triage nurses and ER physicians, with life-saving information for these rare conditions. This patient care coordination note appears in the upper left hand corner in red, when you open […]
Das Marfan-Syndrom verursacht häufig Probleme mit Knochen und Gelenken. In der Tat sind dies oft die ersten Merkmale, die einen Verdacht auf das Marfan-Syndrom erwecken und eine Person zu einem Arztbesuch bewegen, um eine Diagnose stellen zu lassen. Zu diesen Skelettmerkmalen kommt es, wenn die Knochen übermäßig lang werden oder die Bänder (das Bindegewebe, das […]
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.
