Stampa la carta per ogni membro della famiglia. Inserisci il nome del paziente e le informazioni di contatto. Taglia lungo la linea tratteggiata. Piega verticalmente e orizzontalmente. Porta sempre con te questa carta.
Related Resources
Physical Activity Resource
Exercise & Physical Activity With the right guidance, children and adults living with Marfan syndrome, Loeys-Dietz syndrome (LDS), or Vascular Ehlers-Danlos syndrome (VEDS) can — and should — safely include movement and exercise in their daily lives. Our latest resources focus in part on shared decision making. Because recommendations are individualized, shared decision-making is the […]
Tags: Marfan Syndrome , Caregivers, Patients & Families
Overview of Cardiac Management in Marfan Syndrome
Overview of Cardiac Management in Marfan Syndrome Aortic dissection is the major cause of premature morbidity and mortality in Marfan syndrome. Aortic root aneurysm or dissection and ectopia lentis are cardinal features of Marfan syndrome based on the 2010 Gent nosology. For the full diagnostic criteria, please visit MarfanDX.org. Cardiac features that may be seen […]
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.