What are the most common gastrointestinal issues in people with connective tissue conditions? The answer to this question and more can be found in this document from Tony Guerrerio, MD, PhD.
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A concise, evidence-based clinical guidance document from the Marfan Foundation in collaboration with Luciana Young, MD, offering families, pediatricians, and cardiologists practical information on evaluating and treating ADHD in children with genetic aortic and vascular conditions such as Marfan syndrome, Loeys-Dietz syndrome, and Vascular Ehlers-Danlos syndrome. This article is intended for educational purposes only and […]
Recommended Criteria for Development of a Marfan Clinic
The diagnosis, evaluation, and management of Marfan syndrome and related conditions require health practitioners from multiple disciplines with specialized knowledge, skills, and experience in heritable disorders of connective tissue. Patients and families are best served in clinics with demonstrated interest and expertise in this field.
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Different methods are used for aortic root dilatation in different publications (eg.diastolic versus systolic measurement, inner to inner or leading edge to leading edge diameters).
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