The Marfan Foundation’s Global Reach, Lifesaving Impact
From European fundraising marathons to major international meetings, we’re advancing...
Category: News
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
Marfan Foundation Ranked #5 Best Nonprofit to Work for in 2026
Placed Highest in Foundation History, Chosen Among 50 Best Nationally by NonProfit...
Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students
13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...
I’m a Thriver: Chuck Dodds Reflects on 20 Years Living with Loeys-Dietz Syndrome After an Aortic Dissection
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
