Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
Category: News
Marfan Foundation Ranked #5 Best Nonprofit to Work for in 2026
Placed Highest in Foundation History, Chosen Among 50 Best Nationally by NonProfit...
Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students
13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...
I’m a Thriver: Chuck Dodds Reflects on 20 Years Living with Loeys-Dietz Syndrome After an Aortic Dissection
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
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