An Example of What She Hoped For: The Life and Legacy of Bella Welch
“Bella had a way of making people feel as though they were the only person in the world when she...
Category: Awareness
The Time to Act Is Now: A Joint Call to Prevent the Next Aortic Tragedy
The deaths of U.S. Senator Lindsey Graham, Congressman Doug LaMalfa, and bestselling...
Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week 2026
Goal: Raising awareness through storytelling, education and collective action For Media...
Meet Monty: New Resource Aims to Help More Teachers Understand Marfan Syndrome in the Classroom
Students living with Marfan syndrome are more than their diagnoses - they are vibrant young...
Marfan and Loeys-Dietz Awareness Months Reach Nearly 1.2 Million People with Life-Saving Awareness, Raise Essential Funds
The results are in: during Marfan and Loeys-Dietz Awareness Months 2026, the...
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students
13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...
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