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Professional Advisory Board Issues New Statement on COVID-19 Vaccines for Children
The Foundation’s Professional Advisory Board, which is comprised of the country’s foremost...
Category: Awareness
Foundation’s Next COVID-19 Update Webinar on April 26 to Feature Dr. Marcella Nunez-Smith, Senior Advisor to the White House COVID-19 Response Team and Chair of the DHHS COVID-19 Health Equity Task Force
Since the outset of the COVID-19 pandemic, The Marfan Foundation has brought the Marfan,...
#KnowFightWin for Marfan Awareness Month
February is Marfan Awareness Month and The Marfan Foundation urges everyone in the Marfan and...
Survey Results Reveal Greatest Obstacles to Quality of Life
In a survey conducted by The Marfan Foundation to identify the quality of life issues in the...
Marfan and Related Disorders Community Invited to Participate in Hill Day
The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome...
Legislative Action Alert: Urge Responsible Healthcare Reform
The 115th Congress and the incoming administration have made it a priority to “repeal and...
The Marfan Foundation Launches Marfan Awareness Month on February 1 with Multi-pronged #IKNOWMARFAN Campaign
Social media and grassroots events planned to raise awareness of the signs of Marfan and related...
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