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The Marfan Foundation Debuts Kamden’s Korner for Neonatal Marfan Awareness
On Sunday, February 6, as The Marfan Foundation celebrates the South Florida Walk for Victory, the...
Category: Awareness
Small Victories = Big Impact During Marfan Awareness Month (February)
The Foundation knows that small victories have a big impact, especially during Marfan Awareness...
Professional Advisory Board Issues New Statement on COVID-19 Vaccines for Children
The Foundation’s Professional Advisory Board, which is comprised of the country’s foremost...
Foundation’s Next COVID-19 Update Webinar on April 26 to Feature Dr. Marcella Nunez-Smith, Senior Advisor to the White House COVID-19 Response Team and Chair of the DHHS COVID-19 Health Equity Task Force
Since the outset of the COVID-19 pandemic, The Marfan Foundation has brought the Marfan,...
#KnowFightWin for Marfan Awareness Month
February is Marfan Awareness Month and The Marfan Foundation urges everyone in the Marfan and...
Survey Results Reveal Greatest Obstacles to Quality of Life
In a survey conducted by The Marfan Foundation to identify the quality of life issues in the...
Marfan and Related Conditions Community Invited to Participate in Hill Day
The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome...
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