I’m a Thriver: Chuck Dodds Reflects on 20 Years Living with Loeys-Dietz Syndrome After an Aortic Dissection
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...
Category: News
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
Updated May 2026: To support Marfan syndrome awareness, learn the signs, and...
Remembering Raymond John Chevallier
With deep sadness, the Marfan Foundation announces the passing of Raymond Chevallier -...
A Look Back at 2025: Advancing Marfan and Genetic Aortic & Vascular Conditions Research with $1.44 Million in New Grants
Throughout 2025, The Marfan Foundation continued its longstanding commitment to accelerating...
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