If you are a parent of an adult (18 years and older) with VEDS, we invite you to join other parents to discuss your experiences.

* If your child is under 18, please register for the VEDS Parents Support Group *

This group meets on the second Wednesday of every other month from 7-8:30 pm

*Please note, every member wanting to join this VEDS Connect group should have an adult child with a genetically confirmed diagnosis of VEDS to attend. We will request that you confirm that you have an adult child with a VEDS diagnosis before admitting you to this group. We rely on your honesty to keep this a safe space for group attendees. If you do not have an adult child with a genetically confirmed diagnosis of VEDS, please sign up for the Seeking Diagnosis and Newly Diagnosed group instead.*