Rosemarie Nania: VEDS advocate, and community “Hero with a Heart”
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
Tag: VEDS
Simposio Internacional en Barcelona
Simposio Internacional en Barcelona: Claves para una vida plena con Marfan, Loeys-Dietz, VEDS y...
The Marfan Foundation’s Global Reach, Lifesaving Impact
From European fundraising marathons to major international meetings, we’re advancing...
London Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, and Stickler
Please join us for our Second International Symposium/London: Living Better with Marfan,...
NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler
The Marfan Foundation and Weill Cornell Medicine present an educational opportunity for...
Empowered Pain Relief Course
The Marfan Foundation is pleased to offer Empowered Relief®️, a free 2.5-hour pain management...
Driving for DEFY Golf Tournament
2026 marks the 12th anniversary of the Driving for DEFY golf outing! Together, we have raised over...
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