Finding Marfan: A Breakthrough in Mental Health
This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...
Blog Category: Know the Signs
A Workplace Issue You Probably Didn’t Anticipate
It never gets easier. Each time I have to tell someone new about my husband's condition, it seems...
Physical Therapy: Myths and Facts
People everywhere are experiencing the transformative effect physical therapy can have on their...
Sinclaire’s Story from the Heart
Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...
What Fulfills You?
When you think about your life as an able-bodied person, what fulfills you? Does going to work and...
Linh Ngo: My Marfan Story
Part 1 of Linh Ngo’s Marfan story is reprinted here with permission from the author. You can...
Ben Carpenter – My Marfan Story
Before I share my story, I want to clarify that the title of my book, “The Bigs,” has nothing...
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