Celebrating 45 Years of the Marfan Foundation: Heartworks NYC 2026
Honoring Heart, Hope, and Progress The 26th Annual Heartworks fundraising gala in New York...
Category: Announcements
Beyond the Aorta: Dissections Throughout the Body
When people hear the words “dissection,” they often think of the aorta. It’s the...
A New Era in Loeys-Dietz Syndrome: Personalized Care for a Complex Condition
More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated...
The Marfan Foundation’s Global Reach, Lifesaving Impact
From European fundraising marathons to major international meetings, we’re advancing...
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
Marfan Foundation Ranked #5 Best Nonprofit to Work for in 2026
Placed Highest in Foundation History, Chosen Among 50 Best Nationally by NonProfit...
New Book “Making Rent” Aims in Part to Raise Awareness of Marfan Syndrome
Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of...
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