The Time to Act Is Now: A Joint Call to Prevent the Next Aortic Tragedy
The deaths of U.S. Senator Lindsey Graham, Congressman Doug LaMalfa, and bestselling...
Author: The Marfan Foundation
The Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with Marfan, Loeys-Dietz, Vascular Ehlers-Danlos syndromes, and related genetic aortic and vascular conditions.
Meet Monty: New Resource Aims to Help More Teachers Understand Marfan Syndrome in the Classroom
Students living with Marfan syndrome are more than their diagnoses - they are vibrant young...
The Marfan Foundation Mourns the Passing of Co-Founder Dr. Reed Pyeritz
The Marfan Foundation shares with deep sorrow that on Monday, August 10, 2026, we lost...
Ciccariello Family Statement on the Passing of Dr. Reed Pyeritz
The late Priscilla Ciccariello was the original "Marfan Mom" and her mission to protect her family...
Marfan Foundation President and CEO Michael Weamer Receives Metro NYSAE Lifetime Achievement Award
The Marfan Foundation is pleased to share that President and CEO Michael L. Weamer has been...
Be With Your Marfan Foundation Family: Walk for Victory 2026-2027
"Everyone there just gets it." That's the number thing we...
Celebrating 45 Years of the Marfan Foundation: Heartworks NYC 2026
Honoring Heart, Hope, and Progress The 26th Annual Heartworks fundraising gala in New York...
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