Beyond the Aorta: Dissections Throughout the Body
When people hear the words “dissection,” they often think of the aorta. It’s the...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
A World Community Comes Together: Marfan Foundation 2026 Global Virtual Conference
The Marfan Foundation’s 2026 Global Virtual Conference connected individuals and families from...
Ready, Set, Transition: Helping Teens Step into Adult Care
For families navigating life with a genetic aortic and vascular condition, the move from pediatric...
Healing Mentally and Physically After Aortic Dissection
During Mental Health Awareness Month, we recognize that the impact of a genetic aortic or...
Marfan and Loeys-Dietz Awareness Months Reach Nearly 1.2 Million People with Life-Saving Awareness, Raise Essential Funds
The results are in: during Marfan and Loeys-Dietz Awareness Months 2026, the...
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
Marfan Foundation Ranked #5 Best Nonprofit to Work for in 2026
Placed Highest in Foundation History, Chosen Among 50 Best Nationally by NonProfit...
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