Author: The Marfan Foundation

The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.

Foundation Expands Mental Health Resources

The Foundation has launched a new Mental Health section on its website as part of a plan to...

Announcements, Education May 23, 2023May 23, 2023

Community, Conference, Quality of Life May 3, 2023May 4, 2023

A Teen’s Perspective: Finding a Community at Conference

As a teen with a connective tissue condition, building relationships with others who “get” you...

Announcements, News April 18, 2023April 18, 2023

New Director Named for The VEDS Movement

Ryan Rodarmer, MS, has been selected by The Marfan Foundation to lead The VEDS...

Advocacy, Conference, Diagnosis, Know the Signs April 6, 2023April 24, 2023

A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members

Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...

Announcements, News March 24, 2023March 24, 2023

Foundation Receives Mental Health Impact Grant from Global Genes

The Marfan Foundation is honored to receive a grant from Global Genes to support mental health...

Announcements, Events, News March 14, 2023March 14, 2023

Registration is Open for The Marfan Foundation’s 39^th Conference in Chicago, July 13-16

The Marfan Foundation, in conjunction with Ann & Robert H. Lurie Children's Hospital of...

Events News, News February 28, 2023February 28, 2023

The Marfan Foundation to Honor Reed E. Pyeritz, MD, PhD, and Sanjeev Bhalla, MD, at Heartworks St. Louis, March 11

The Marfan Foundation is honored to present Reed E. Pyeritz, MD, PhD, with a Lifetime Achievement...

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