Linzy’s Story: Dislocated lenses, Marfan diagnosis, multiple procedures, and career-affirming understanding
Linzy Brown's story of life with Marfan syndrome is deeply connected to her eyes and heavily...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People
Thanks to the outstanding support of our community members, Marfan Awareness Month and...
“Marfan just happens to be a part of me…” Andrea’s Story
Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...
Marfan in the News: Boomer & Gio in the Morning on WFAN Sports Radio
We were grateful for a spur-of-the moment chance to share some quick facts about Marfan...
Register for our 40th Conference
We are thrilled to invite you to the 40th Marfan Foundation Conference, happening July...
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Help & Resource Center FAQs: Top 5 Questions Answered:
Started in 1992, the Foundation’s Help & Resource Center reaches more than 5,000 people...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
