Marfan and Loeys-Dietz Awareness Months Reach Nearly 1.2 Million People with Life-Saving Awareness, Raise Essential Funds
The results are in: during Marfan and Loeys-Dietz Awareness Months 2006, the...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
Marfan Foundation Ranked #5 Best Nonprofit to Work for in 2026
Placed Highest in Foundation History, Chosen Among 50 Best Nationally by NonProfit...
“Alone we are rare, together we are strong!”: Rare Disease Day Advocacy 2026
Director Loeys-Dietz and Marfan for the Marfan Foundation Stacey Watson shares her...
New Book “Making Rent” Aims in Part to Raise Awareness of Marfan Syndrome
Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of...
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
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