Marfan.org Offers Multilingual Access: Now available in over 25 languages
Explore Marfan.org, the primary hub for patient education on Marfan syndrome, now accessible in...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Miracles Run In My Family
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Foundation Announces $500,000 In New Research Grants
Thanks to the generosity of our supporters, the Foundation awarded five new research grants. These...
New Director Announced for Loeys-Dietz Syndrome Foundation
Stacey Watson has been selected by The Marfan Foundation to join its team as Director of the...
Running with Purpose: Jenny Braverman
Running this marathon on behalf of my family and others affected by Marfan Syndrome and related...
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Together, We Can Know the Signs
and Fight for Victory
Together, We Can Know the Signs
and Fight for Victory