• We offer two-year grants for scientists at different stages of their career. This seed funding is essential for many scientists to obtain preliminary data required to compete for more competitive grants at the National Institutes of Health or other organizations.
• We can announce study participation opportunities to our Marfan syndrome and related conditions community to help scientists reach their enrollment goals.
• We can help connect you to other scientists to obtain resources – such as biological samples and mouse models – that you might need for your research.
• We advocate with members of Congress on behalf of the research community for adequate funding of the National Institutes of Health and other government institutions where researchers usually apply for funding. We also advocate at the National Institutes of Health for grant mechanisms that will benefit the Marfan and related conditions population.
• We act as a convener, organizer and supporter of state-of-the-art research meetings, such as the International Symposia on Marfan Syndrome and Related Conditions, to facilitate and maintain international collaboration among scientists in the field.

To discuss your research or obtain more information, please email research@marfan.org.

• The molecular etiology of Marfan syndrome and related conditions
• The biochemical abnormalities produced by the underlying mutations in genes
• The clinical consequences of these mutations
• Medical and surgical management and the effects of these interventions on natural history

These meetings are held at several-year intervals to allow time for sufficient progress and the assessment of new advances and their impact. Scientific advances presented at these meetings included discovery of the gene that causes Marfan syndrome. Important meeting outcomes included the development of research agendas and directives for revising diagnostic criteria.