Know the Signs, Fight for Victory

2025 Annual Report of the Marfan Foundation

The Foundation takes pride in meeting and exceeding the standards of excellence regarding accountability, transparency and good governance set forth by the National Health Council. The Marfan Foundation has been a member in good standing since 2002. In addition, the Foundation is 4-star Charity Navigator Charity with a 99% rating and has earned the Candid Platinum Seal of Transparency, the highest awards offered by these organizations.

We are supported by contributions from our members and friends, as well as by individual, corporate, and foundation grants. We actively seek tax-deductible contributions for programs that help us advance our mission.

For additional reports or questions, contact us.

View Our 2025 Annual Report

Our major sources of funding include the following:

  • Special Events

    The Foundation hosts a wide range of events throughout the year to raise awareness of Marfan syndrome and related conditions while generating critical funds to support our mission. In Fiscal Year 2025, special events remain our largest revenue source, accounting for approximately 61% of total revenue, or $4.4 million. These events include Heartworks Galas, Walks, and other mission-driven fundraising initiatives that engage our community and supporters nationwide.

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  • Foundations

    The Foundation receives significant support from private and family foundations that share our commitment to improving outcomes for individuals and families living with genetic aortic and connective tissue conditions. In Fiscal Year 2025, foundation funding represented approximately 18% of total revenue, totaling $1.5 million.

  • Corporate Support

    Corporate partners support the Foundation’s mission through event sponsorships, corporate gifts, employee matching programs, workplace giving initiatives, grants, and in-kind contributions. In Fiscal Year 2025, corporate support accounted for approximately 14% of total revenue, or $1.1 million, reflecting continued engagement from companies aligned with our mission and values.

For a complete look at our financials, please download the following:

Copies are also available by mail upon request.  

Together, We Can Know the Signs
and Fight for Victory

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