Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Camp Victory for Families: California 2025
Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS,...
<Rescheduled> Support for Young Adults with Marfan, VEDS, LDS and related conditions
Have you been diagnosed with Marfan syndrome, VEDS, Loeys-Dietz syndrome or another related...
The Northern Illinois Chapter’s Annual Chocolate Fundraiser
February is Marfan Awareness Month! The Northern Illinois Chapter asks for your support in raising...
Support for Parents/Guardians of Children with Early-Onset (Neonatal) Marfan Syndrome
Are you a parent or guardian of a child with early onset (previously called neonatal or infantile)...
Camp Victory for Families: Georgia 2025
Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS,...
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