Know the Signs, Fight for Victory

large group photo of camp victory participants in an outdoor shelter structure smiling

Camp Victory

Summer camps are a rite of passage for many children — where they can learn independence and grow in a safe environment. A regular day camp or sleepaway camp is not always practical or safe for children living with Loeys-Dietz syndrome, Marfan syndrome, VEDS or a related condition. 

That’s why Camp Victory exists: to provide a medically-supervised, safe experience that enables young people to create connections with other kids and form meaningful bonds that can last a lifetime.

Each camp will have an on-site social worker offering support and programming and a medical staff familiar with connective tissue conditions assisting with medication management and other health-related matters.

a fami8ly of four in matching camp t=shirts making homemade candles outside.

Camp Victory for Families 

Offers programming for children and teens ages 5 to 18 and their families. It features traditional summer camp activities, such as paddleboats, arts and crafts, mini-golf, and swimming, as well as other standard camp activities that are modified so that all can participate. Parents have the opportunity to get involved in activities with their children and participate in professionally-led support groups.

Registration is $125 per person for the weekend family camps. Children must be accompanied by at least one adult.

Camp Victory-Families Q&A
three kids, two standing, one in seated in wheelchair, huddled together and smiling while wearing matching camp victory t-shirts surrounded by trees

Camp Victory for Kids

Offers children and teens, ages 7 to 16, an opportunity to have an independent camp experience. Children participate in all camp activities, such as lake swimming, boating, arts and crafts, dances, campfires, and much more, in a safe environment using only therapeutic and adaptive equipment. When your child shares these experiences with their peers, they create memories that change them forever.

Registration is $200 per person for the five-day kid’s camps.

Camp Victory-Kids Q&A

Registration fees include lodging, meals, and activities, and all fees have been significantly discounted thanks to the generous support of Camp Victory donors. A limited number of scholarships are available. To apply, please complete the application form here. Scholarship applications must be received at least eight weeks prior to the start of the camp. Please contact Andrea Friedman, MSW, at afriedman@marfan.org for more information.

Refunds for medical reasons will be provided up to two weeks prior to camp upon written request.

Camp Victory Covid-19 Policies

Camp Victory Dates & Locations

  • One thing I love about Camp Victory is how you never feel like you are missing out because of your condition. It is also nice that everyone understands you, and you don’t have to constantly answer questions about yourself.

    Keller

    Camper

  • Camp Victory was the first overnight camp we sent our kid to. Knowing that the staff would understand his condition and that almost all the kids would be on medication was comforting. He got to experience new activities safely and has made friendships with people who just get him!

    Kessika

    Mother

  • I am so happy that I can send my kids to camp and know that their medical needs will be taken care of!

    Forrest

    Father