Marfan Awareness Month Facts
In most cases, Marfan syndrome is inherited from a parent. However, in about 25% of cases, the affected person is the first in the family to have the condition.
A dislocated lens in the eye is a hallmark of Marfan syndrome. A particular test called a slit-lamp eye exam is needed for an eye doctor to detect a dislocation.
People with Marfan syndrome may be disproportionately tall, with long arms and legs and an arm span greater than their height.
To get evaluated for Marfan syndrome and related conditions, you need to have your heart, eyes, and bones examined by doctors who have experience with these conditions.
People living with Marfan syndrome are 250 times more likely to have an aortic dissection than the general population. An aortic dissection is a tear in the artery that takes blood from the heart.