Skip to content

Search for:

Know the Signs, Fight for Victory

Facebook
Instagram
Twitter
YouTube

Conditions
Living With Marfan
Research
Resources
Get Involved
About Us
Donate

Conditions

Marfan Syndrome
Neonatal Marfan Syndrome
Loeys-Dietz Syndrome
Vascular Ehlers-Danlos Syndrome (VEDS)
Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS)
Stickler Syndrome

Beals Syndrome
Bicuspid Aortic Valve
Ectopia Lentis Syndrome
Ehlers-Danlos Syndrome
Familial Aortic Aneurysm
MASS Phenotype
Shprintzen-Goldberg Syndrome

Related Links

Getting Diagnosed
Glossary
Connect With Community
Ask a Question

Living With Marfan

Know the Signs
Getting Diagnosed
Genetic Testing
Management
Mental Health

Quality of Life
Emergency Preparedness
Parent Toolkit
Pregnancy
Blog

Related Links

Resources for Patients & Families
Glossary
Ask a Question

Research

Our Research Impact
Get Involved in Research
Support Research
Research Grant Program

Funded Grants
Scientific Meetings
Find Study Participants

Related Links

Resources for Healthcare Professionals
Glossary

Resources

Find Care
Resources for Patients & Families
Parent Toolkit
Educational Opportunities

Ask a Question
Glossary
Connective Issues
Resource Library

Related Links

Resources for Healthcare Professionals
Marfan DX

Get Involved

Walk for Victory
Ways to Give
Connect With Community
Volunteers for Victory

Attend an Event
Calendar
Advocacy
International

Related Links

Camp Victory
Ask a Question

About Us

Our Mission and Vision
Our Team
Annual Report & Financials

Shop
News
Contact Us

Related Links

Conditions
Donate
Ask a Question

Webinar

January 2025

25

January

Saturday

Cumbre de La Fundación Marfan 2025

Virtual

Facebook
Twitter
Linkedin
Email

View Detail

No event found!

Popular Links

Conditions
Diagnosis
Resources
Calendar
Find Care
Donate

Join us in the fight for victory over genetic aortic and vascular conditions. Sign up to get the latest news and updates.

First Name

Last Name

Email

Condition Connection

I/They are affected by

My/their diagnosis is

Phone Number

Specialty

reCAPTCHA helps prevent automated form spam.

The submit button will be disabled until you complete the CAPTCHA.

Questions?

Contact our Help & Resource Center

Facebook
Instagram
Twitter
YouTube

©2024 The Marfan Foundation

Privacy
International
Intranet
Glossary

This website was funded in part by an education grant from the Chu and Chan Foundation. The Marfan Foundation is a qualified 501(c)(3) tax-exempt organization. EIN: 52-1265361

Website by: HeartSpark Design | Photography by: Tim Joyce Photography and Rick Guidotti