Please Note: Due to Memorial Day (US), this group will meet on Thursday, May 28, 2026, at 2 pm EST. (instead of Monday, May 25, 2026)

The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended for community members living outside of the United States. It is conducted in English. Normally, the LDS International Connect meets on the 4th Monday of each month at 2 pm EST.

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

On June 9, 2026, the Marfan Foundation welcomes guests to Cipriani 42nd Street for Heartworks NYC 2026, an extraordinary evening celebrating 45 years of The Marfan Foundation’s impact, progress, and hope.

This year’s gala, with returning Dinner Chairs Karen Murray and Sinclair Li, honors the Foundation’s legacy of advancing research, improving patient care, and supporting individuals and families affected by Marfan syndrome and related conditions—while looking ahead to the future we are building together.

We are proud to present the Inspiration of Excellence Award to Dr. Alan and Rebecca Braverman, recognizing their extraordinary leadership and dedication to the Marfan community. The Hero with Heart Awards will be presented to Jim Prutow and Roe Nania, honoring their generosity, advocacy, and unwavering commitment to our mission.

The evening will feature electrifying entertainment by Electric Avenue and an exciting live auction led by Harry Santa Olalla.

Heartworks NYC is a celebration of community, resilience, and the heart behind 45 years of lifesaving work—and the many milestones still to come.

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

The Marfan Foundation’s 2026 Global Virtual Conference brings together a global community of individuals living with Marfan syndrome, Loeys-Dietz syndrome (LDS), Vascular Ehlers-Danlos syndrome (VEDS), Stickler syndrome, and related conditions, as well as their families, healthcare professionals, and researchers.

Over four days, participants will explore the many dimensions of life with these conditions through sessions on medical care, mental health, emerging research, and opportunities to connect, learn, and build community, helping participants to Know. Connect. Thrive.

Programming is available for adults, teens, and children.