Invitamos a pacientes y sus familias a unirse a nosotros en un día educativo sobre el síndrome de Marfan, el síndrome de Loeys-Dietz y el síndrome vascular de Ehlers-Danlos (VEDS). La cumbre de este año contará con presentaciones sobre los últimos avances en investigación y genética/planificación familiar. Además, expertos locales hablarán sobre cómo obtener atención médica en España, México, Colombia, Chile y Argentina. Además habrá espacio para responder sus preguntas. La Fundación Marfan ofrece esta cumbre de manera completamente gratuita. Será totalmente virtual y transmitida en línea, para que pueda acceder desde cualquier lugar del mundo. El enlace de Zoom se enviará después de registrarse.

Para obtener más información, póngase en contacto Eileen Novins en enovins@marfan.org.

February is Marfan Awareness Month! Let’s come together for our Chili and Chocolate Social for great fellowship and delicious food. We will also have boxes of World’s Finest Chocolate bars that you can pick up to sell to your family, friends, neighbors, co-workers, etc., to help raise money for research and programs funded through the Marfan Foundation. Check out the flyer for more information.

If you are unable to attend the event but would like to sell chocolates for our fundraiser, please contact us to make arrangements. This candy sale is a great way to spread awareness about Marfan syndrome and related conditions.

RSVP to illinoisgroup@marfan.org or 630-803-6246 by Monday, January 19, with the total number of people attending

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

Join us for a special evening at the Chicago HeartWorks Gala on Friday, February 20, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

Guests will enjoy cocktails, dinner, entertainment by Maggie Speaks, exciting live and silent auctions, and great company! Proceeds from the event provide essential funding for support, education, and research that directly benefit our community. For more information, contact Kara Burke at kburke@marfan.org.

Please join us for a webinar on the Lifecycle of the Aorta, a presentation from the Genetic Aortic Network, a division of The Marfan Foundation. Do you ever wonder what’s normal for the aorta and what’s due to a genetic aortic condition? This webinar will focus on the aorta from childhood, through adulthood, and into the senior years. The presenters are Dr. Glen Iannucci, Children’s Hospital of Atlanta, Dr. Michelle Lim, Central Sydney Cardiology (Australia), and Dr. Juan Bowen, Mayo Clinic/Rochester, MN. In addition to the presentations, there will be plenty of time to ask questions.

This event will be on February 23, 2026, at 7:00 PM EST (US) and February 24, 2026, at 11:00 AM AEDT (Australia)

Do you ever wonder what’s normal for the aorta and what’s due to a genetic aortic condition? If you were unable to join us for the live webinar on Lifecycle of the Aorta, here is another chance to view the webinar and ask questions as Dr. Elena Cervi, from the Great Ormond Street Hospital in London, will be joining us LIVE.

Lifecycle of the Aorta, a presentation from the Genetic Aortic Network, a division of The Marfan Foundation, will focus on the aorta from childhood, through adulthood, and into the senior years. The presenters are Dr. Glen Iannucci, Children’s Hospital of Atlanta, Dr. Michelle Lim, Central Sydney Cardiology (Australia), and Dr. Juan Bowen, Mayo Clinic/Rochester, MN. Following the recording, Dr. Cervi, who has expertise in both adult and pediatric cardiology, will answer your questions in real time.

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!