Name: Newly Diagnosed & Those Seeking Diagnosis
Start: 2026-05-18
End: 2026-05-18
Location: Virtual

May 2026

18 May

2:00 pm - 3:00 pm

Newly Diagnosed & Those Seeking Diagnosis

19 May

7:00 pm - 9:00 pm

Kids Club

Location

Virtual

Category

All Conditions - Support Groups

Kids Club

Support Groups- All Conditions

Virtual Support Groups

More Info

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.

The Kids Club will include fun, age-appropriate games and activities for your child (such as Bingo, Would You Rather, Scavenger Hunt, 5 Second Rule, etc) and will be held on Zoom.

This is a recurring group that meets monthly on the third Tuesday of every month. (Register once and attend any dates)

25 May

2:00 pm - 3:30 pm

LDS Connect International

28 May

2:00 pm - 3:30 pm

Rescheduled LDS Connect International

30 May

11:00 am - 2:00 pm

Walk For Victory – Northern California

Location

Stanford Center for Academic Medicine

453 Quarry Rd, Palo Alto, CA 94304

Category

Walk for Victory

More Info

Join the Walk for Victory movement!

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.

Together, we raise awareness and help families get the best medical care from leading experts.

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more!

YOU GET IT…

Let’s do it TOGETHER!

30 May

11:00 am - 2:00 pm

Walk For Victory – Philadelphia

June 2026

06 June

11:00 am - 2:00 pm

Walk For Victory – Pacific Northwest (Seattle)

Location

Seward Park

5900 Lake Washington Blvd S, Seattle, WA 98118

Category

Walk for Victory

More Info

Join the Walk for Victory movement!

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.

Together, we raise awareness and help families get the best medical care from leading experts.

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more!

YOU GET IT…

Let’s do it TOGETHER!

07 June

11:00 am - 2:00 pm

Walk For Victory – Milwaukee

Location

Greenfield Park, Shelter 5

2028 S 124th St, West Allis, WI 53227

Category

Walk for Victory

More Info

Join the Walk for Victory movement!

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.

Together, we raise awareness and help families get the best medical care from leading experts.

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more!

YOU GET IT…

Let’s do it TOGETHER!

09 June

All Day

HeartWorks NYC 2026

Buy Tickets

Location

Cipriani 42nd Street

110 E 42nd St, New York, NY 10017

Category

Heartworks Gala

Heartworks NYC

More Info

Buy Tickets

On June 9, 2026, the Marfan Foundation welcomes guests to Cipriani 42nd Street for Heartworks NYC 2026, an extraordinary evening celebrating 45 years of The Marfan Foundation’s impact, progress, and hope.

This year’s gala, with returning Dinner Chairs Karen Murray and Sinclair Li, honors the Foundation’s legacy of advancing research, improving patient care, and supporting individuals and families affected by Marfan syndrome and related conditions—while looking ahead to the future we are building together.

We are proud to present the Inspiration of Excellence Award to Dr. Alan and Rebecca Braverman, recognizing their extraordinary leadership and dedication to the Marfan community. The Hero with Heart Awards will be presented to Jim Prutow and Roe Nania, honoring their generosity, advocacy, and unwavering commitment to our mission.

The evening will feature electrifying entertainment by Electric Avenue and an exciting live auction led by Harry Santa Olalla.

Heartworks NYC is a celebration of community, resilience, and the heart behind 45 years of lifesaving work—and the many milestones still to come.

11 June

7:00 pm - 8:00 pm

LDS Connect

13 June

12:00 pm - 3:00 pm

Walk For Victory – Chicago

Location

Lincoln Harbor - Diversey Event Space

2601 North Cannon Drive, Chicago, IL 60614

Category

Walk for Victory

More Info

Join the Walk for Victory movement!

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.

Together, we raise awareness and help families get the best medical care from leading experts.

Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more!

YOU GET IT…

Let’s do it TOGETHER!

14 June

11:00 am - 2:00 pm

Walk For Victory – Boston

No event found!