This webinar will highlight life with Stickler syndrome from clinical and lived experience viewpoints. Dr. Taran Youssefian Blakstvedt, a licensed clinical psychologist at the TRS National Resource Centre for Rare Disorders in Norway, will share preliminary findings from her ongoing research on quality of life in individuals with Stickler syndrome. In addition, three community members will share their personal experiences and discuss how they navigate life with Stickler syndrome.