Tag: webinar

Stickler Syndrome Genetics: What You Need to Know

...

January 22, 2025January 22, 2025

Your Eyes and Stickler Syndrome: What You Need to Know

...

December 10, 2024December 12, 2024

Dural Ectasia in Marfan and Loeys-Dietz Syndrome

...

November 15, 2024November 18, 2024

Using Mindfulness to Increase Joy and Decrease Stress

...

October 11, 2024October 11, 2024

VEDS Emergencies: Know When to Go and What to Say

...

October 7, 2024January 6, 2025

Marfan Basics: Taking Care of Your Aorta

...

August 26, 2024September 3, 2024

Webinar: Mindful Art for Adults

...

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory