As a result of our longstanding commitment to research, we have helped drive significant progress in the understanding, diagnosis, and treatment of Marfan syndrome, LDS, VEDS, and related conditions. We collaborate with leading scientists and clinicians who share our dedication to creating a healthier future for individuals and families living with these conditions.

Through our research grant program, we have helped grow the community of researchers studying Marfan syndrome and related conditions, supporting discoveries that improve diagnosis, treatment, and care across the many body systems these conditions can affect.

The research we have championed has also contributed to the identification of additional genetic aortic and vascular conditions related to Marfan syndrome. These discoveries help enable more accurate diagnoses and support the development of more personalized and effective approaches to care.

To expand the impact of this work, we advocate for increased government investment in research that improves health outcomes and quality of life. We also help advance knowledge-sharing through conferences, symposia, and partnerships with governmental agencies, researchers, clinicians, and other health organizations. 

We continue to advance research for Marfan syndrome and related conditions because progress in one area often leads to discoveries that benefit the broader genetic aortic and vascular condition community.

Each year, the Marfan Foundation supports innovative scientific research through our research grant program. Since 1986, we have invested more than $23 million in research through grants and other strategic initiatives.