We can connect you with local community groups, which are located all over the country. Many groups focus on social and support events, while other groups also hold fundraising and awareness events. You can get involved in all or some of the events held by your local group. In some areas, we have individual support volunteers rather than a group. These friendly volunteers are available to share information and support via phone or email. In addition, we can connect you with people from all over the country who are going through the medical experiences that you are going through.
You may also be interested in virtual support groups. Click here to find out about special interest virtual support groups that are meeting now.
Find a Support Group in Your Area
Northern California Community Group
nocalgroup@marfan.org
Houston Community Group
houstongroup@marfan.org
Saint Louis Community Group
stlouisgroup@marfan.org
Massachusetts Community Group
massgroup@marfan.org
Can’t Find a Group?
Please complete this form so we can best serve you. Our regular business hours are 9am – 5pm Eastern Time, Monday through Friday. We will respond to your requests within two business days. If you are experiencing an emergency or crisis, you should contact your personal doctor, call 911, or go to the nearest emergency room.