Know the Signs, Fight for Victory

Author: Dominga Noe

Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. Originally from California, she began working for The Marfan Foundation in 2016 at its New York headquarters. Now she lives and works from Kansas City, MO as the Foundation's Marketing and Design Manager. A long-time Foundation volunteer, Dominga is the first staff member who has Marfan.