Variants of Uncertain Significance: What a VUS Result Means for You and Your Family
A variant of uncertain significance (VUS) is a common genetic test result, but one that often...
Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
People’s Perspectives: Living with Loeys-Dietz Syndrome
For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome...
Simposio virtuale sulle sindromi di Marfan, Loeys-Dietz, VEDS e Stickler
Invitiamo i pazienti e le loro famiglie a partecipare a un simposio virtuale con presentazioni, in...
Walk For Victory – Boston
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
Insights from the LDS Natural History Study at NIH: Audiology and Otology
Insights from the LDS Natural History Study at NIH: Audiology and Otology offers an in-depth look...
HeartWorks NYC 2026
On June 9, 2026, the Marfan Foundation welcomes guests to Cipriani 42nd...
Raise Awareness: Share What You Want the World to Know
Raise Awareness: Share What You Want the World to Know One of the most powerful ways to raise...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
