100 Club
We gratefully recognize Walk For Victory locations that raise over $100,000 in a given year....
Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Northwest Genetic Aortopathy & Arteriopathy Program Regional Symposium on Marfan Syndrome, Loeys-Dietz, and Vascular Ehlers-Danlos Syndrome
The Northwest Genetic Aortopathy & Arteriopathy Program Regional Symposium on Marfan Syndrome,...
VEDS Parent Support Group for Adult Children
If you are a parent of an adult (18 years and older) with VEDS, we invite you to join other...
Austin Regional Symposium: Living Better with Marfan, LDS, and VEDS
The Marfan Foundation welcomes you to attend the Austin Regional Symposium. The symposium is for...
Medizinisches Management des Marfan-Syndroms
Das Verständnis, wie die Merkmale des Marfan-Syndroms behandelt werden, wird Ihnen auf Ihrer...
Walk For Victory – Atlanta
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
Walk For Victory – Raleigh
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
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