Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Datos Sobre el Síndrome de Marfan
Datos Sobre el Síndrome de Marfan El Síndrome de Marfan es un trastorno del tejido...
Virtual Heartworks New York City Gala
Join us from the safety and comfort of your home for the 20th anniversary of The Marfan...
Top Five Things I Wish I Knew Before My Aortic Surgery
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...
Top 10 Benefits of Remote Jobs for those with a Chronic Condition
When I came to work for the Foundation in 2016, I was the first full-time employee with Marfan...
Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
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