Occupational Therapy for Living with Loeys-Dietz
From adaptive clothing and devices to strengthening exercises and activities, occupational therapy...
Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Eye Research Webinar Replay
* If you were unable to attend the live webinar, we are replaying it.* Dr. Doyle will discuss...
Lungs Research Webinar Replay
* If you were unable to attend the live webinar, we are replaying it.* Dr. Neptune discussed...
Mid-Atlantic Regional Chat
Join members of the Marfan, Loeys-Dietz and VEDS communities from the United States Mid-Atlantic...
The Marfan Foundation’s 39th Conference
The Marfan Foundation hosts an annual conference that provides people living with Marfan syndrome,...
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