Walk For Victory – Pacific Northwest (Seattle)
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Music and Mindfulness: Supporting Well-Being for Individuals Living with Aortic and Vascular Conditions through Music Therapy
In this interactive webinar, music therapist and mindfulness practitioner Katelyn “Katey”...
Walk For Victory – Nashville
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
San Francisco Marfan Meetup
Connect with others with connective tissue conditions! Let's get lunch at Gotts Roadside at Chase...
Empowered Relief® with Dr. Beth Darnall
Empowered Relief® is a one-time class that equips individuals with essential pain relief skills...
Walk For Victory – Southern California
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
Ask the VEDS Experts: Fireside Chat for Action Month
Join leading experts in Vascular Ehlers-Danlos syndrome (VEDS) for a special Action Month Fireside...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
