Know the Signs, Fight for Victory

Living with Risk: Webinar for People with Genetic Aortic and Vascular Conditions

If you have Marfan, Loeys-Dietz, VEDS, or another genetic aortic or vascular condition, getting your aorta monitored is part of your recommended medical management. Knowing you are risk can be scary, even if you know you are following your doctor’s advice regarding medications, monitoring, and lifestyle. Your worries may be both physical and mental. In this webinar from the GenTAC Alliance, you’ll hear from medical experts – Dr. Juan Bowen, Mayo Clinic, and Dr. Glen Iannucci, Children’s Healthcare of Atlanta – as well as a mental health expert, Karen MountainJohnson. They will discuss from a medical perspective how to best manage your risk as well as how to cope with living with risk from a mental health perspective. We hope you will join us.

Date

Jan 24 2022

Time

EST
7:00 pm - 8:00 pm

Location

Virtual
Eileen Masciale

Organizer

Eileen Masciale
Email
emasciale@marfan.org
Register