“My name is Penelope Robles, and I’m from the Philippines. This is the story of my 4-year-old daughter, Destinee Jaye, who was diagnosed with Marfan Syndrome when she was two months old.”
Want to share your story?
Send your pic & quote to brandcomms@marfan.org.
Ways to Spread the Word on Social Media
With Canva Templates
We’ve created easy-to-use Canva templates that allow you to update your profile picture or create a post to share online.
Don’t Have Canva? No Problem!
Use Our Downloadable Art
Marfan Fact Graphics
English
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1080 x 1080px Downloads
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Know the Signs
Spanish
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1080 x 1080px Downloads
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Know the Signs
Looking for Marfan Awareness Month facts in more languages?
We’ve got you covered! Click the button below for a page that can be translated into over 25 different languages.
Simply choose your preferred language in the dropdown menu, and you can copy, paste, and share these life-saving facts all year round.
Public Proclamations
Support awareness and action in your community with these easy how-to guides.
If you’ve received a proclamation, send a picture to brandcomms@marfan.org so we can share it with our community!
Questions? Contact brandcomms@marfan.org