Marfan Awareness Month Facts

In most cases, Marfan syndrome is inherited from a parent. However, in about 25% of cases, the affected person is the first in the family to have the condition.  

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A dislocated lens in the eye is a hallmark of Marfan syndrome. A particular test called a slit-lamp eye exam is needed for an eye doctor to detect a dislocation.  

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People with Marfan syndrome may be disproportionately tall, with long arms and legs and an arm span greater than their height.  

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To get evaluated for Marfan syndrome and related conditions, you need to have your heart, eyes, and bones examined by doctors who have experience with these conditions.  

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People living with Marfan syndrome are 250 times more likely to have an aortic dissection than the general population. An aortic dissection is a tear in the artery that takes blood from the heart.