We inform our community about studies that are open for enrollment. We describe the study rationale and objectives, explain some of the eligibility criteria and what participation may involve, and provide contact information for additional information or assistance with enrollment.

To facilitate enrollment, we educate our community about the benefits of being part of a study, what to expect, and things they should know before making a decision.

To learn more about the Foundation’s guidelines for announcing research studies or to request media coverage, please email lmay@marfan.org.