Das Marfan-Syndrom ist eine ernste Erkrankung, die lebensgefährliche Komplikationen haben kann. Dank der Fortschritte in der medizinischen Versorgung können Patienten mit Marfan-Syndrom eine normale Lebenserwartung haben, wenn sie richtig diagnostiziert und behandelt werden.
Related Resources
Career Development Award
The Career Development Award will support two-year $100,000 grants ($50,000 per year) in basic, translational, or clinical research studying any discipline involved in Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome, and other related conditions. This grant program is designed to support investigators early in their career to derive preliminary data in a key concept area […]
Tags: All , Healthcare Professionals, Researchers
Walk for Victory Registration Guide
Register for your Walk for Victory by following the simple steps in our registration guide. Whether you join as an individual or create a team, we look forward to seeing you soon!
Tags: All , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.