Das Marfan-Syndrom ist eine ernste Erkrankung, die lebensgefährliche Komplikationen haben kann. Dank der Fortschritte in der medizinischen Versorgung können Patienten mit Marfan-Syndrom eine normale Lebenserwartung haben, wenn sie richtig diagnostiziert und behandelt werden.
Related Resources
Teens and Marfan Syndrome
If you were recently diagnosed with Marfan syndrome or if you have known about it for years, there are probably hundreds of thoughts, questions, and concerns rushing through your head. On one hand, there is a whole new world of medical information to learn. On the other hand, there is your life as a teen. […]
Tags: Marfan Syndrome , Patients & Families
The Eyes in Marfan Syndrome
Marfan syndrome and some related disorders can affect the eyes in many ways, causing dislocated lenses and other eye problems that can affect your sight. Except for dislocated lenses, these eye problems also occur in the general population, which is why doctors do not always realize they are caused by Marfan syndrome. It is important […]
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.