La sindrome di Marfan è una malattia grave e alcune complicazioni sono potenzialmente letali. Grazie ai progressi dell’assistenza medica, le persone affette da sindrome di Marfan possono avere una durata di vita normale se la malattia viene diagnosticata e trattata in modo appropriato.
Related Resources
Ectopia Lentis Syndrome Fact Sheet
In some families, dislocation of the lens of the eye (ectopia lentis) is the predominant feature that passes from generation to generation. Sometimes, this occurs along with some of the skeletal (bone and joint) features of Marfan syndrome. This combination of features is called ectopia lentis syndrome. What are the characteristics of ectopia lentis syndrome? […]
LES ANTÉCÉDENTS MÉDICAUX DE VOTRE FAMILLE
Connaître les antécédents médicaux de votre famille peut vous aider, vous et vos médecins, à déterminer les risques possibles pour votre santé. Vous pouvez peut-être prévenir certaines affections en modifiant votre mode de vie et en faisant des choix de vie plus sains. Vous pouvez également bénéficier d’un traitement précoce pour certaines maladies. Téléchargez cette […]
Tags: Marfan Syndrome , Caregivers, Patients & Families
Career Development Award
The Career Development Award will support two-year $100,000 grants ($50,000 per year) in basic, translational, or clinical research studying any discipline involved in Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome, and other related conditions. This grant program is designed to support investigators early in their career to derive preliminary data in a key concept area […]
Tags: All , Healthcare Professionals, Researchers
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