Molte persone affette da sindrome di Marfan o da alcune malattie correlate manifestano complicazioni polmonari, ovvero problemi ai polmoni. È importante che chi soffre di sindrome di Marfan si rivolga a uno pneumologo (uno specialista dei polmoni) se sospetta di avere problemi ai polmoni.
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Datos Sobre el Síndrome de Marfan
El Síndrome de Marfan es un trastorno del tejido conectivo. El tejido conectivo es el que hace que todas las partes del cuerpo se mantengan en su lugar y ayuda a controlar el crecimiento del cuerpo. Como el tejido conectivo se encuentra en todo el cuerpo, las características del Síndrome de Marfan pueden ocurrir en […]
Tags: Marfan Syndrome , Patients & Families
Mental Health Resources
While most people with chronic conditions focus on their physical health, mental health is often ignored. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.
Tags: All , Caregivers, Patients & Families
Walk for Victory Registration Guide
Register for your Walk for Victory by following the simple steps in our registration guide. Whether you join as an individual or create a team, we look forward to seeing you soon!
Tags: All , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.