La escoliosis es una curvatura de la columna hacia un lado. Aproximadamente 6 de cada 10 personas con síndrome de Marfan tienen escoliosis, pero solamente 1 de cada 3 necesitan tratamiento médico para ella. Una persona necesita tratamiento cuando tiene dolor de espalda, cambios importantes en su postura y la forma de su cuerpo o si tienen probabilidad de presentar problemas para respirar más adelante. La escoliosis puede presentarse en cualquier parte de la columna, pero es más común en la parte superior de la columna.
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Teens and Marfan Syndrome
If you were recently diagnosed with Marfan syndrome or if you have known about it for years, there are probably hundreds of thoughts, questions, and concerns rushing through your head. On one hand, there is a whole new world of medical information to learn. On the other hand, there is your life as a teen. […]
Bones and Joints in Marfan Syndrome
Marfan syndrome often causes problems in the bones and joints—in fact, these are often the features that first lead a person to suspect Marfan syndrome and seek a diagnosis.These features (called skeletal features) happen when bones grow extra-long or ligaments (connective tissue that holds joints together) become stretchy—like loose rubber bands. What are the common […]
Tags: Marfan Syndrome , Patients & Families
Die Lunge Beim Marfan-Syndrom
Viele Patienten mit Marfan-Syndrom und einigen verwandten Erkrankungen haben Probleme mit ihrer Lunge. Wenn Sie das Marfan-Syndrom haben, ist es wichtig, dass Sie einen Pneumologen (einen Spezialisten für Lungenkrankheiten) aufsuchen, wenn Sie den Verdacht haben, dass Sie Probleme mit Ihrer Lunge haben.
Tags: Marfan Syndrome , Patients & Families
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