Muchas personas con el síndrome de Marfan y algunos trastornos relacionados sufren complicaciones pulmonares o problemas con los pulmones. Si usted tiene el síndrome de Marfan, es importante que consulte a un experto en pulmones (médico de los pulmones) si sospecha que tiene cualquier problema con los pulmones.
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Need-to-Know Information for the Teacher
Marfan syndrome is a life-threatening genetic disorder that causes some physical problems that can interfere with a student’s ability to perform in the classroom without modifications. These physical limitations cause many students living with the disorder to feel isolated and alone. We hope this guide enables educators to: Understand the basics of Marfan syndrome and […]
Tags: All, Marfan Syndrome , Caregivers, Patients & Families
Emergency Preparedness Kit
Emergency Preparedness Kit This kit is your tool to help you be prepared in the event of an emergency. We suggest putting the completed packet in a brightly colored envelope or folder so it is easy to find. At home, keep it near the door so it is handy for Emergency Medical Services (EMS) and […]
Tags: All , Healthcare Professionals
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.