Muchas personas con el síndrome de Marfan y algunos trastornos relacionados sufren complicaciones pulmonares o problemas con los pulmones. Si usted tiene el síndrome de Marfan, es importante que consulte a un experto en pulmones (médico de los pulmones) si sospecha que tiene cualquier problema con los pulmones.
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Tags: Marfan Syndrome , Caregivers, Patients & Families
Need-to-know Information for the School Nurse
As the health needs of schools have changed since 1902, the role of school nursing has evolved to meet those changing needs. The school nurse plays an important leadership role in prevention of illness or injury, identification of medical problems through screening programs, and overall health maintenance. This is particularly important when a student has […]
Tags: Marfan Syndrome , Caregivers, Patients & Families
How to Ask for Help Guides
When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.