Muchas personas con el síndrome de Marfan y algunos trastornos relacionados sufren complicaciones pulmonares o problemas con los pulmones. Si usted tiene el síndrome de Marfan, es importante que consulte a un experto en pulmones (médico de los pulmones) si sospecha que tiene cualquier problema con los pulmones.
Related Resources
Parent Toolkit
This Parent Toolkit is a resource for parents of children with Marfan, Loeys-Dietz, VEDS, or another genetic aortic condition. It offers resources to help you deal with your child’s school, doctors, and healthcare, and guide you to additional resources for information and support.
Tags: Loeys-Dietz Syndrome, Marfan Syndrome, VEDS , Caregivers
Marfan Syndrome: The Basic Facts
Marfan syndrome is a life-threatening genetic disorder of the body’s connective tissue. Knowing the signs of Marfan syndrome, getting a proper diagnosis, and receiving the necessary treatment can enable people with Marfan syndrome to live a long and full life. What are the features of Marfan syndrome? Who has Marfan syndrome? What is life like […]
Tags: Marfan Syndrome , Patients & Families
Carte D’Alerte
Téléchargez cette carte et conservez-la en cas d'urgence. Présentez cette carte aux urgences et demandez au médecin de suivre les instructions avant de vous libérer de ses soins.
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.