Know the Signs, Fight for Victory

Knowledge is power. And we want to make it as easy as possible for you to access information from our world renowned Professional Advisory Board and other leading medical experts on Marfan and related conditions. Prepare for Victory: Virtual Medical Symposium Series is a webinar series that will arm you with the latest diagnosis and treatment information from the experts. We hope this knowledge will empower you to advocate for yourself or your family members with your doctors, schools, employers, and more.

Each webinar is one hour. It will feature a Powerpoint presentation, followed by ample time to ask questions. You can access it on your desktop, laptop, smartphone, tablet, or other device so you can watch the presentation. Or, you can simply dial in by phone and listen. Once you register for each webinar, you will receive a personal link for logging on. If you are unable to listen live, all recordings will be available on this website following the presentation.

For quality of life webinars that empower you to live better with your diagnosis, please click here.

For our COVID webinars, and other information for about covid for our community, please click here.

Previous Webinars

  • Advances in the Treatment of Aortic Dissection – May 2021

    Dr. Marc Moon and Dr. Westley Ohman, Washington University School of Medicine
    *This webinar is a presentation from the GenTAC Alliance, a division of The Marfan Foundation


  • Aortic Imaging: Your Questions Answered – April 2021

  • Adult Cardiology Issues: Your Questions Answered – March 2021

  • Surgery Series: Aortic Arch Surgery – February 2021

  • Surgery Series: Open Thoracoabdominal Repair – February 2021

  • Surgery Series: Aortic Root Surgery – February 2021

  • Surgery Series: Mitral Valve Surgery – February 2021

    Dr. Duke Cameron and Dr. Amy Spooner, Massachusetts General Hospital.


  • Lens Surgery: Your Questions Answered – January 2021

2020 Webinars

Headaches and Migraines: Your Questions Answered – October 2020

Dr. Addie Peretz, Stanford Healthcare

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions – May 2020

Dr. Rachel Kuchtey, Vanderbilt Eye Clinic

Pregnancy and Marfan Syndrome – April 2020

Dr. Melissa Russo, Brown University

Dental Concerns in Marfan Syndrome and Related Conditions – January 2020

Dr. Sylvia Frazier-Bowers, University of North Carolina-Chapel Hill

2019 Webinars

Management of Dissections and Aneurysms in VEDS – December 2019

Sherene Shalhub, MD, University of Washington

Lung Issues in Marfan Syndrome – September 2019

Dr. Enid Neptune, Johns Hopkins School of Medicine

Aging Issues in Marfan and Related Conditions – May 2019

Dr. Juan Bowen, Mayo Clinic

Children’s Heart Issues in Marfan, Loeys Dietz, and Vascular Ehlers Danlos Syndromes – April 2019

Dr. Ron Lacro, Boston Children’s Hospital

Vascular Ehlers Danlos: An Overview – March 2019

Dr. Sherene Shalhub, University of Washington
Dr. Shaine Morris, Texas Children’s Hospital

Keeping Your Spine, Limbs, and Feet Healthy In Marfan Syndrome and Related Conditions – January 2019

Dr. Paul Sponseller, Johns Hopkins
Dr. Adam Bitterman, Northwell Health

2018 Webinars

Loeys Dietz Syndrome: An Overview – November 2018

Dr. Hal Dietz, Johns Hopkins University School of Medicine

Marfan 101 – September 2018

Dr. Luciana Young, Seattle Children’s Hospital

Taking Care of Your Aorta – October 2018

Dr. Alan Braverman, Barnes-Jewish Hospital, Washington University School of Medicine, St. Louis