Procedure/Application for Inclusion in Institution Directory

To be listed on our institution directory, each institution MUST download, complete, and upload the PDF-enabled application and medical director’s CV as outlined below. A one-hour discussion with the Foundation is also required after completed applications are received.

The Marfan Foundation believes that many academic medical centers can provide exceptional diagnostic, management, and surgical services. Years of experience in the field, as well as the number of patients managed and the number of surgeries performed, can give a patient a sense of the level of expertise of a facility.

In 2021, we established a new procedure for listings in our institution directory. We provide our community with all clinic information and data based on information received through the application. Institutions listed in our directory are required to review and update information every year.

For guidance on the required criteria and completing the new application, please download the document below. If you have any questions, please contact lmay@marfan.org.