Share Your Story

First Name

Last Name

Mobile:

Street Address

City

Country

State

Postal Code

Provinces

State/Province

Condition connection:

I am affected by:

My diagnosis is:

They are affected by:

Their diagnosis is:

Your Story

Tell us about yourself and about living with a genetic aortic or vascular condition (how you were diagnosed, how it affects your family, how you deal with it, what you learned, etc):

I am willing to be interviewed to discuss my story further

YesNo

Collected stories may be used in future Marfan Foundation publications, both print and online.

Contact sbenvenuti@marfan.org for details.