Tag: Support Groups

(Rescheduled) Stickler Connect

In honor of those who observe Yom Kippur, we are changing the dates of the two support groups...

September 24, 2025September 24, 2025

July 24, 2025October 10, 2025

Stickler Connect

You are warmly invited to join our support group for individuals diagnosed with Stickler...

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

Marfan
Foundation
Loeys-Dietz Syndrome Foundation
The VEDS
Movement

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory