Tag: Support Groups

Stickler Connect

You are warmly invited to join our support group for individuals diagnosed with Stickler syndrome....

July 24, 2025September 3, 2025

Together, We Can Know the Signs
and Fight for Victory

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Marfan
Foundation
Loeys-Dietz Syndrome Foundation
The VEDS
Movement

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

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Stickler Connect

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory