Tag: webinar

Hearing Issues in Stickler: Diagnosis and Treatment

Please join us for an educational webinar, Hearing in Stickler: Diagnosis and Treatment. This free...

August 15, 2025August 15, 2025

July 24, 2025July 24, 2025

Living with Stickler Syndrome: Professional and Personal Perspectives

This webinar will highlight life with Stickler syndrome from clinical and lived experience...

May 19, 2025May 20, 2025

Cerebrospinal Fluid (CSF) Leaks in Marfan and Related Conditions Webinar

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May 1, 2025May 1, 2025

Empowered Pain Relief Webinar

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April 1, 2025April 1, 2025

Taking Care of Your Aorta: An Update for Aussie and Kiwi Patients and Families

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January 23, 2025January 23, 2025

What You and Your Healthcare Professionals Should Know About Marfan Syndrome

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January 22, 2025February 12, 2025

Stickler Syndrome Genetics: What You Need to Know

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory