Tag: webinar

Living with Stickler Syndrome: Professional and Personal Perspectives

This webinar will highlight life with Stickler syndrome from clinical and lived experience...

July 24, 2025July 24, 2025

May 23, 2025May 23, 2025

Navigating Government Disability/SSDI Benefits

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May 19, 2025May 20, 2025

Cerebrospinal Fluid (CSF) Leaks in Marfan and Related Conditions Webinar

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May 1, 2025May 1, 2025

Empowered Pain Relief Webinar

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April 1, 2025April 1, 2025

Taking Care of Your Aorta: An Update for Aussie and Kiwi Patients and Families

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January 23, 2025January 23, 2025

What You and Your Healthcare Professionals Should Know About Marfan Syndrome

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January 22, 2025February 12, 2025

Stickler Syndrome Genetics: What You Need to Know

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Together, We Can Know the Signs
and Fight for Victory

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory