Allison DenBoer is a mother of three and she just recovered from her 3rd open heart surgery. Alison authors the blog faithhopeheart.blogspot.com to share her life experiences as a person living with Marfan syndrome. She hopes to help others who might feel alone in their diagnosis. She wants to inspire her daughter who also has this condition.
Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.