Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Living with Stickler Syndrome: Professional and Personal Perspectives
This webinar will highlight life with Stickler syndrome from clinical and lived experience...
The Northern Illinois Chapter Potluck Picnic
Please join the Northern Illinois Chapter of the Marfan Foundation for a potluck picnic and fun...
Stickler Connect
You are warmly invited to join our support group for individuals diagnosed with Stickler syndrome....
GI Issues Q&A
GI Issues Q&A General GI Concerns in Connective Tissue Conditions What are the most...
HeartWorks Chicago
Join us for a special evening at the Chicago HeartWorks Gala on Friday, February 20, as we come...
San Francisco Lunch Get-Together
Connect with others with connective tissue conditions! Lunch: Gotts Roadside at the Ferry Building...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
