Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Digital Community Guidelines & Disclaimer
Digital Community Guidelines & Disclaimer The Marfan Foundation is committed to...
The Marfan Foundation’s 40th Conference
The Marfan Foundation, in association with Children’s Healthcare of Atlanta and Emory...
Rescheduled LDS Connect International
Please Note: Due to Memorial Day (US) this group will meet on Tuesday May 27, 2025 at 2pm EST....
Walk For Victory – Cleveland
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...