Author: Lauren Atherton

Marfan Connect (50+) Support –

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would...

March 15, 2023March 15, 2023

Mental Health

Mental Health Mental health refers to a person’s psychological, emotional, and social...

November 14, 2022November 14, 2022

Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome,...

October 31, 2022October 31, 2022

Coping with COVID Stress

If you are experiencing added stress due to the COVID pandemic, please join us for this weekly...

March 2, 2022October 14, 2022

LDS Connect

If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to...

Spanish Language Summit

Segunda Cumbre de la Fundación Marfan: Información educativa sobre Marfan, Loeys-Dietz,...

October 29, 2021March 3, 2022

Evening with Heart Raleigh

Enjoy a special night at Evening with Heart Raleigh. Cocktails, light bites, a silent auction, and...

Together, We are Fighting for Victory

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Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

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Together, We are Fighting for Victory

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Together, We are Fighting for Victory

Know the signs. Fight for victory.

Together, We are Fighting for Victory