Steve is a pastor in NW Pennsylvania and the father of five children, two with Marfan syndrome. He speaks yearly to medical students about Marfan syndrome and how one can still have hope in the midst of this condition. He’s also written a manuscript, Custom Scars, that is currently being considered for publication where he addresses Marfan syndrome, hope, and faith.
Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.