Know. Connect. Thrive.

Research Provides Hope for the Future

We are committed to advancing research that improves care, enhances quality of life, and expands opportunities for people living with Marfan syndrome, LDS, VEDS, and related conditions.

The research we support has helped reduce life-threatening complications, improve quality of life, and increase longevity for people living with these conditions. We continue to invest in research because many individuals and families still face barriers to diagnosis, treatment, and ongoing care.

Our Research Impact

Each year, The Marfan Foundation pursues the most innovative research by providing support through our research grant program. Through our research grants and other commitments, we have funded more than $23 million in research since 1986. 

Get Involved in Research

By enrolling in a research study, you can help researchers answer important questions about Marfan syndrome and other genetic aortic and vascular conditions.

Donate to Research

You can help us advance research on Marfan syndrome and other genetic aortic and vascular conditions.

For Researchers

The Marfan Foundation supports researchers around the world through its grant program,
international scientific meetings, and the Genetic Aortic Network.

CRISPR and Marfan Syndrome

Here’s an overview of CRISPR and its potential for treating Marfan and related conditions.