Know the Signs, Fight for Victory

LDS Guidelines: Then vs. Now

What is common vs. what is uncommon? What did we know, and what needs to be addressed?

Join an interactive discussion on the current guidelines for Loeys-Dietz syndrome types 1-6 with Johns Hopkins’ Dr. Hal Dietz and Gretchen MacCarrick, MS, CGC. This presentation will describe common and uncommon characteristics of each type and the proposed plan for creating new guidelines. In addition, attendees will have opportunities to submit questions and participate in a needs assessment to assist in crafting the new LDS-type guidelines.



Jun 07 2023


7:00 pm - 8:00 pm