Know the Signs, Fight for Victory

Pain ManagementRepeating Event

Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
25 Jul
7:00 pm
Virtual

Teen Game NightRepeating Event

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
05 Aug
7:30 pm
Zoom

A Time to Talk: Monday Matters!Repeating Event

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
12 Aug
Virtual

Coping with Grief and LossRepeating Event

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
13 Aug
6:00 pm - 7:00 pm
Virtual

Teen TalkRepeating Event

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
19 Aug
7:30 pm - 9:00 pm
Zoom
No event found!